Friday, February 20, 2026

Just one more hand of cards

 Since I’ve been fighting Stage IV cancer, the word "persevere" has taken on new meaning. My body simply can't do the things I literally have dreams about. I wake up reaching for a version of myself that no longer exists, and because my energy is now such a precious resource, I’ve become very intentional about my time.


Thinking about this last week, I reached into my grandmother’s "happiness file" and pulled out a note she’d written: "Keep Going."

The timing felt perfect because I'd woken up with a brief reprieve from pain and fatigue. In fact, for the first time in a long while, I felt like “me.” So, I seized the moment and asked my son, Trey, if he’d spend the afternoon with me.

Trey is almost eighteen. He stands over six feet tall, with broad shoulders and a graduation cap and gown waiting to debut in May. He's a man in the making; yet, when I asked for his time, the years practically melted away. His eyes lit with a familiar, boyish spark. He didn't want anything fancy, just to go for a ride and play cards at a restaurant—a ritual from the years before "cancer" became a household word.

My heart clenched when I realized he didn't just want a burger; he longed to relive a piece of his childhood from before I got sick. So, we grabbed my electric seated scooter—a necessary concession since I can’t walk very far—and headed toward a local spot. As we went down the sidewalk, the irony of this moment turned into something beautiful.

In 2020, doctors gave me two years to live. Yet, here we are in 2026. I'm still breathing the afternoon air, sharing salty French fries with my son, and losing spectacularly at Rummy. The weight of that miracle hit me mid-hand. He won the game, but I won the moment.

By the cruel math of my original diagnosis, Trey should've been mourning traditions, visiting a grave, and wishing for just one more hand of cards. Instead, we sat in a noisy restaurant, marveling at the miracle of time.


Cancer has taken my stamina, but it's paid in clarity. As parents, we try giving our kids the world, but what they really want is simply our time.

Monday, February 16, 2026

The Best Moment of Each Day

I’ve told you about my grandma’s “Happiness File,” a priceless, weathered collection of scraps, clippings, and handwritten notes tucked away like buried treasure. Each note holds something thought-provoking, and on my toughest days, they feel like notes from Heaven.


Recently, I pulled a card from the file, and in her familiar, looping handwriting rested three simple words: “Love is patient.”

My mind immediately drifted back twenty years: While frying scones, my grandma said that if love could have two essential ingredients, it should be patience and loyalty.

At the time, "patience" sounded horrendous…like something you needed at the DMV, not for the person you adored. I knew her relationship with my grandpa wasn’t perfect. I’d seen when the car keys went missing or they’d sigh over unfinished chores. But beneath the superficial, their bond wasn't just a fleeting feeling; it’d become rock-solid because no matter how tough or frustrating life could be, they still chose each other, every single day.

Still, as a twenty-something with the attention span of a squirrel drinking espresso, being "patient" felt impossible. "Grandma," I said, dodging a playful swipe of her dish towel, "if G-d gave me any gifts, patience wasn't one of them. I’m more of a ‘let’s get this done yesterday’ kind of girl."

She let out a rich laugh, then leaned in with the best marital advice I’ve ever received: “Elisa,” she said, her eyes twinkling, “the secret to a long marriage is simple: As long as you’re only a jerk one at a time, you’ll be fine. It’s when couples decide to be jerks at the same time that things go bad.”

Looking back, I realize that marriage and real love are nothing like I expected.

There are the high-stakes moments that test the "loyalty" part of Grandma’s equation. I think about the time Mike, our dog, and I hiked in the dead of winter. The world felt like a cathedral of white until—without warning—a sound like a crack of thunder ripped through the air, and a massive frozen waterfall began breaking from the cliffside directly above us.

The sound terrified me like a freight train falling from the sky. As the world splintered with blue ice chunks and white powder exploding everywhere, Mike didn’t hesitate. After pulling us to an overhang, he threw himself over me and our dog, pinning us there and shielding us with his own body. As massive chunks of frozen waterfall shattered against the ground like glass bombs, Mike didn't move an inch. He became the wall between me and the breaking world—and it’s been like that ever since.

Then there are the "patient" moments—the quieter stretches of life: watching our children graduate, navigating the loud, chaotic beauty of a house full of life, or the simple times, sitting together and playing games as a family.

But the true test of Grandma’s wisdom came after doctors diagnosed me with stage 4 cancer. Patience takes on a different hue when you’re sitting in a cold waiting room for the hundredth time. It looks different while navigating the paralyzing fear that precedes brain radiation or numerous surgeries. On days, the pain isn't just physical; it’s an emotional weight that threatens to overwhelm me. And at one point—before brain radiation—I told Mike I was done, ready to quit fighting death and surrender.

But Mike? He didn’t try to fix the situation with empty platitudes, he simply held me, and his patience acted as a buffer against the world once more. When I got too weak to stand, he didn't just offer a hand; he literally carried me. He became the physical manifestation of that "loyalty" and “patience” my grandma spoke about in her kitchen. Quite simply, he is the reason I'm still alive today.

With Valentine’s Day just behind us, I’ve found myself reflecting on my life with Mike. I’ve realized that he doesn’t just show up for the "big" days—the anniversaries, birthdays, or frozen waterfall moments—he’s the one who makes the good times incredible and the bad days somehow better.

Yesterday, the house fell quiet for a rare moment, and the familiar, metallic creak of our screen door echoed through the front room.

"The best part of my day," I told Mike as he walked in, "is hearing that screen door creak open. Because I know you’re finally home."

He didn't say anything at first and just pulled me into a hug so tight I wished he’d never let go. In the silence of that moment, I realized my grandma was right. Marriage does teach you patience, and I've had a front-row seat, watching Mike’s example every single day.

So, this Valentine’s, I thought about how lucky I am, celebrating a man who reminds me that love isn't just a word on a card. It’s the person who selflessly stays and makes life somehow better on the good and bad days too.


Sunday, February 1, 2026

Happy sweet 16, Indy


 It's hard to believe she's 16 today, and it feels like just yesterday we were blowing out her first birthday candle. This year, Indy’s wish was bigger than ever—to participate in a foreign exchange program for her next school year.


We are overwhelmed with gratitude for the incredible generosity of everyone who has donated to her GoFundMe or bought a scarf ( myfireflyfashion.com ). Thanks to your support, she is so close to reaching her goal! The other day, she looked at the numbers and was moved to tears by the kindness and generosity of so many incredible people. You are truly making her dream a reality, and it means the world to her—and to us.



We can't wait to share more details about her trip soon! She has a big event with Rotary this upcoming weekend where we'll get more information. Stay tuned for updates on where she's headed – she is beyond excited!


Thank you from the bottom of our hearts for making this extraordinary opportunity possible.



If you’d like more information, you can find her GoFundMe here: 

https://gofund.me/8c20da640








#Sweet16 #ForeignExchange  #DreamsComeTrue #GratefulHeart #MakingADifference #ecstilson 

Life is Bittersweet

Last Friday marked the solemn anniversary of my first son’s passing, and that made me think of something. In my family, late January/early February always felt special because my mom’s birthday and mine are just five days apart. Growing up, those days in between became extraordinary times to celebrate, ending with my own birthday on Groundhog Day. For a long time, this represented the happiest moments of my life.



But in 2003, everything shattered. On January 30th, I had to take my son off of life support. He died in my arms—an experience so harrowing that it redefined my entire world. His viewing fell on my birthday, followed the next day by his funeral.



 
I truly believed my birthday would always be a horrific reminder, and for years I didn’t feel like celebrating, instead re-experiencing that trauma and bracing for impact every time Groundhog Day rolled around.
 
But life has a strange, magical way of turning the soil when we least expect it. Years later, I got pregnant with my last baby. She made her grand entrance on February 1st—thirty minutes before my birthday.
 
My mom remarked on how incredible the timing was. Within that tiny window between her birthday and mine, the universe had tucked both the date of my son’s death and the date of my daughter’s birth.


I'll never forget sitting in that hospital bed the day after Indy was born. Nurses walked in with a cake and sang “Happy Birthday” while I held my precious newborn baby—and the moment took my breath away.

The very day once a monument to grief had now been reclaimed by new life.

People often say that time heals, but although time doesn't take the loss away, it does change things. When I look back now, the sharp, jagged edges of loss have softened. I don’t just remember the sorrow of my son's death; I remember the warmth of holding him…and the love.


 
So, last week, on the sobering anniversary of when he died, I fully realized that, yes, life is filled with both shadows and light, but if you are in a dark season, it's worth it to hold on because you never know what miracle could be right around the corner if you have the courage to just keep moving forward.