Monday, September 16, 2024

Fate and the Death in Teheran

Most of my friends are quite a bit older than me, and I'm grateful for the deep conversations we have. Just this weekend, my 89-year-old friend came over and wanted to talk about fate.


"I don't believe in destiny or fate," he said. "The primary reason G-d created us — if there even is a G-d — was to prevent boredom. Can you imagine being the divine creator and knowing everything? That must be exhausting. I don't think He knows our future either. Maybe He could find out, but I doubt He wants to know. Why not let it be a surprise to everyone — even Him?"

"That idea makes me feel better," I said. When I first got diagnosed with cancer, I hated the thought of it being "G-d's will" or that I was sick for a reason. In fact, some of the things we tell ourselves seem so trite. I don't want to be sick "because of my sins" or think "G-d only gives us what we can handle." I've seen people get way more than they can handle, like my poor cousin who took his own life because of the cruelty of others who acted out of their own right to free will. (And then, when my son died, some people said he was born with defects to help others. That thought devastated me because he deserved to have a long, happy life too...)

"It's much easier thinking I'm sick because G-d refuses to interfere," I said. "I guess it's less personal. If that makes sense." That's the only way I can reconcile why bad things happen to anyone.

He nodded.

And as we sat there in silence, a story suddenly came to me. "Have you heard about the 'Death in Teheran'? It's a really thought-provoking story."

"No," he responded, "can't say that I have."

"Basically," I replied, "a king's servant comes up to the king, frantic because he was just visited by Death. 'Please give me your fastest horse so I can elude Death,' the servant said to the king. 'I'll ride all the way to Teheran and hide there.'" I paused at this point and took a sip of my coffee. "The king thought about the servant's kindness and hard work over the years and immediately gave him his best horse, but the moment the servant and horse galloped away, Death appeared in front of the king!"


My friend's eyes widened, surprised at the twist in the story.

"'Why did you threaten my servant?' the king asked Death. 'I didn't threaten him,' Death said, 'I simply expressed my surprise at seeing him here! It seemed odd because I have an appointment to take his life tonight — far from here — in Teheran.'"

My friend loved the story, and we talked for a while about fate possibly being inescapable.

"I will never understand myself," I said. "Some days I find peace in thinking I'll die at the exact moment I'm supposed to. Other days, I don't want G-d to have a plan because everyone's hardships are less personal."

My friend nodded. "I guess we'll know everything after we die."

"Everything?" I asked.

"Yes," he said. "I think so."

"But what about boredom? You said G-d doesn't even want to know everything." I swallowed, really pondering it. "That... sounds like my version of Hell." And in that moment, I couldn't help imaging a bunch of beings floating around completely bored in the afterlife, playing chess for the trillionth time and waxing poetic. Maybe just ceasing to exist after this life doesn't seem that bad? But what do I know!

"Well, maybe we won't know everything." He laughed. "There's one thing that's for sure though; I really hope you'll get better and that I'll die before you. When you were really, really sick, back in 2021, I hated not knowing which one of us would die first. I'm older. You're too young right now. And..." He paused. "What I learned in the second half of my life... the things I got to experience... I want that for you."

He's 48 years older than me. That's longer than I've even lived so far. "I want you to live forever and ever," I said.

"Awe... I don't think we should wish that on anyone." He smiled with such a wealth of knowledge that I can only pretend to understand.

"I'm already experiencing so much though," I said, "and I'm starting to have hope." I told him then how in my most-recent MRI, the cancer hasn't grown! This is huge news because it means that maybe something is actually working — and in the least — these current cancer treatments are giving me a bit more time. "My new oncologist said I probably will die from melanoma, but he believes there IS actually a chance that I might beat this!"

I remember where everyone had stood in the room when my oncologist said this. It felt like time stopped and the wind had been knocked from my chest. Had he really just said I have a chance? I might beat this? After so many doctors keep saying this is terminal...

After he said all of this, he expressed the importance of hope, and I felt like he'd thrown me a lifeline. Maybe... just maybe it's NOT time for my trip to Teheran just yet. Sometimes that's how cancer treatments feel, like I'm doing this to buy more time and hide from death. But like the story says, can we even evade death at all? Or is there a time set in stone for each of us? Like so many people say, that's why we should appreciate each day and be grateful for the journey. For example: what could the servant have done during his last day, instead of letting fear overshadow the final moments of his life as he rushed to Teheran?

Friday, September 13, 2024

A Kiss at the Fair

The man stared as I peddled newspapers, but instead of coming over to my booth at the fair, he thoughtfully paced back and forth. I studied his kind demeanor, wondering if most people with Down syndrome are like him: honest and unassuming. 

As the day continued, I questioned why life is unfair. Why did this man, who continued watching me, face such hardships when other people don't appreciate their lives? 

After a while, my thoughts turned to my son who died. He had birth defects, and the doctors dubbed him "mentally handicapped." They even said that if he grew into adulthood, he wouldn't have a quality of life. 


 During the pregnancy, doctors claimed he'd have Down syndrome, but when that proved wrong, they tested for trisomy. More results came back negative, and experts never could label the strange mix of birth defects he had. 

My world fractured when he died at 2 1/2 months. And I'd never know what he would've been like—if he'd be gentle like this young man at the fair. Or inquisitive? Would his eyes have held that deep kindness too? 



I could've cried at the newspaper booth, surrounded by articles about births and deaths, murders and other serious crimes... 

I wished for a second that I could feel the arms of G-d wrap around me to remind me that everything will be okay and He somehow has a plan. 

In that moment, when I’d totally descended into sadness, the man who had Down syndrome left the person next to him and gracefully zig-zagged toward me. 
 
“I like you,” he said. “I just do.” 

“Well... Thank you.” I blinked. "And, I like you!”

“Hug?” He kicked a rock by his shoe.

“Um. Sure.” 

So I held out my arms wide, and he placed his head softly on my shoulder as I hugged him. We remained momentarily, and it truly felt like the presence of G-d surrounded both of us, wrapping us in complete warmth. 

The man turned, then lightly kissed my shoulder before darting away. Tears filled my eyes, not because I felt sad anymore, but because I knew that I'd just met an angel.

Here are some pictures of that week during that fair. That was such an incredible time.




I absolutely loved running that newspaper. 
Some of the best adventures of my life happened there.

Monday, September 9, 2024

Kissed by an Angel at the Fair


Since the Eastern Idaho State Fair just wrapped up, I've been remembering several moments from when I had a booth at the fair in 2019. I thought my job would be pretty straightforward: I'd meet new people at the fair, talk about the newspaper I worked for, and try to get new subscribers. But at one point, something surprising happened.


The man stared at me from across the way as I sat peddling newspapers, but instead of coming over, like many other people did, he simply paced back and forth, watching.  


At one point, I must have looked thoughtfully at him because he returned the action. Sometimes I wonder if people with Down syndrome are like that: honest and unassuming. 


As the day continued, he kept glancing over, and I really wondered what he was thinking. The man must have been in his early twenties, inquisitive, and determined. I'm still unsure why, but I started wondering about things like Down syndrome and how life is so unfair. Why did this man face such hardships when other people don't even appreciate their good fortune? I'd just read an article in the newspaper about how suicide rates are rising. Why can't everyone be happy and healthy? Mentally and physically okay too?


Of course, the more I pondered this, my thoughts suddenly turned to my son who died. He’d had birth defects, and the doctors dubbed him "mentally handicapped." They kept saying, "If he even grows into adulthood, he won't have a quality of life."


A part of me wondered if they’d been right. Although he died as a baby, it was hard to stop imagining what he really would have been like as an adult. After all, I'd been shocked by how much doctors hadn't known.... And it made me doubt everything.


During the pregnancy, my main OBGYN thought my son would have Down syndrome, and when that proved wrong, they said he must have trisomy. They performed all sorts of tests before he was born AND after, but they never discovered a reason for the combination of birth defects he had: a cleft lip and palate, a diaphragmatic hernia, an extra half a pinky... This mix baffled all of us, but (as doctors said) it's a miracle any of us are born healthy at all.


If my boy had grown into adulthood, would he have been gentle and inquisitive like this young man who studied me at the fair? Would his eyes have held such kindness too?


I’m normally so happy, but I suddenly descended into sadness about the unfairness of life. And as I sat there, I could've cried surrounded by newspapers that boasted births and deaths; scholarships and petty thefts; traffic accidents, suicide rates, murders and other serious crimes...  


I wished for a second that I could feel the arms of G-d wrap around me to remind me that everything will be okay. In that moment, I whispered all of these things to G-d. It seemed like when my son died, he left a hole that'd never be filled--not unless G-d decided to take the pain away.


Suddenly, when I’d descended into the very worst of this feeling, the man with Down syndrome gracefully zig-zagged toward me.


“I like you,” he said. “I just do.”


“Well... Thank you.” I blinked, and then brightened, for his sake. "And, I like you!”


“Hug?” He looked down and kicked a rock by his shoe.


“Ummm. Sure.” So I held out my arms extremely wide, and he placed his head softly on my shoulder as I hugged him. I swear that somehow it felt like the presence of G-d surrounded both of us, wrapping us in this beautiful, strong warmth.  


The man turned, then lightly kissed my shoulder before darting away. "I love you, k!” he yelled from a short distance.


Tears filled my eyes, not because I felt sad, but because I’d witnessed something amazing.  


“Thank you for that,” his caregiver quickly said, still keeping an eye on the young man.


“He’s pretty special isn’t he?” I said, and as his caregiver nodded, I felt like I'd just met an angel.


*Note: I'm in the process of converting to Judaism. "G-d" is spelled with a dash here out of respect. It's actually such a beautiful tradition if you have the time (or inclination) to look it up.

Wednesday, September 4, 2024

The Power of Vulnerability

The man stared, probably wondering why I sat RIGHT next to him when dozens of seats rested vacant around us.

“Hi,” he said, choosing direct contact as the anecdote for awkwardness.

“I’m Elisa.” I beamed, and he reluctantly shook my hand. 

Thin skin framed his blue eyes, and I knew something scary brought him to the hospital. 

I remembered a recent conversation then, when someone asked why I have exceptional occurrences with strangers. “It’s because I’m vulnerable, and I put myself out there,” I said. Honestly, I’d love to sit away from people because that’s comfortable. But sometimes people look lonely.

Step #1: Be brave. 

Now, for step #2: Be vulnerable.

“My husband went to get our car,” I blurted. “I have stage 4 cancer. It’s hard adjusting. I can’t walk as far as I used to.” 

He remained quiet, digesting the quick string of words. I probably sounded like a squirrel—an espresso-loving squirrel who had cancer.

After a while, he squinted toward the cloudy sky. “Yeah, I have a hard time walking too far too.”

“I don’t know your situation, but I found something that helps me.”

“Really?” he asked, more eager than I expected.

“The opposite of fear can be a lot of things, right? Peace, hope, knowledge… But what I’ve found takes the fear away the fastest for ME is trust. If I can somehow trust that there’s a plan, cancer loses its sting.”

“You must get so scared,” he said. “I just found out that I… I have a heart condition. And I’ve been embarrassed to be scared. Men aren’t supposed to be afraid.” He looked exhausted from carrying all that responsibility.

“But we all get scared. I just hope you’ll find what the opposite of fear is for you.” I paused. “For me, I just want to see my kids grow up. It’s peaceful realizing everything will be okay no matter what because G-d is looking out for everyone. Even me.”

A quiet understanding settled between us, and we didn’t say much more. Instead, we gazed at the luminous sky. Cirrus clouds spread to the edges of the mountaintops, framing the sun perfectly, and I thought how ironic it is that my love of the sunshine is still what doctors say will kill me. I’ll never fully understand melanoma.

(Picture taken earlier this year.)